The EU has recently enhanced the potential of health data in the EU digital market by promoting a number of initiatives and new regulations to facilitate data sharing and re-use among public institutions: the forthcoming provisions of the Digital Strategy Corpus of law.
These, in combination with pre-existing rules and practices of health data exploitation, might sharpen the risks for citizens, for example allowing public bodies to exploit big data sets – to make detrimental decisions regarding the access of certain patients to health care (e.g., in the case of insurance-based systems). In this context, academic analysis is urgently needed, as well as suggesting a revision of the new regulations to EU policy-makers to facilitate responsible data sharing.
DataCom aimed at building a new framework to facilitate an ethical secondary use of health data held by public bodies, with the aim of improving accountability and enhancing responsible re-use. To build it, I developed and tested in intersectoral practical environments the innovative concept of “Ethical Commodification”: the possibility of exploiting personal data in an ethical way for the public good, in accordance with the data subject’s expectations and needs and taking into account the risks associated with the exploitation of anonymized data sets, focusing on 3 Member States, Italy, Spain, and the Netherlands.
In order to reach this objective, DataCom had a strong interdisciplinary and intersectoral approach, bridging law, ethics, and computer science, taking into consideration the needs of the public sector and those of citizens. To ensure the successful implementation of these project goals I conducted my research at the University of Turin’s Law Department, with the guidance of Prof. Ugo Pagallo, a leading scholar. This project prepared me to become a tenured scholar and obtain advanced funding, strengthening my academic profile and preparing me to establish my own research group.